March is Brain Injury Awareness Month—a time to recognize the millions of individuals living with the effects of brain injury and to foster awareness, support, and understanding. Having worked in medical and physical rehabilitation settings as a Certified Therapeutic Recreation Specialist (CTRS), I have witnessed the profound impact of brain injuries on individuals and their loved ones. Now, as a therapist, I continue to support people through the emotional shifts that can accompany these life-changing events.
The Challenge of Change and Ambiguous Loss
Brain injuries, whether traumatic (TBI) or acquired (ABI), often bring changes are sudden and disorienting. These changes can affect cognition, emotions, mobility, and often one’s sense of self. The experience of brain injury can also include ambiguous loss—a grief process that's unclear and confusing. The person who experienced the injury is still physically present, but may feel completely different internally. It may feel impossible to grieve while still uncovering all that has been lost.
The Power of Personal Narrative
One of the most meaningful aspects of healing after brain injury is redefining your personal narrative. A brain injury does not erase who you are, but it may require you to reframe your story—to integrate both past and present versions of yourself, and understand the new parts the define you.
I’ve seen firsthand how recreation, movement, and creative expression can help people reconnect with themselves after an injury. Engaging in activities that foster a sense of mastery, joy, or relaxation can help people begin to weave in different narratives and perspectives. This might look like adapting a former hobby, exploring personal expression through creative arts, spending time in nature, or learning new skills.
Building a Support System
Creating new narratives might also look like leaning into support. Brain injury recovery is not linear, and having a network of understanding professionals, friends, family members, and peer support can make a significant difference. Local and national organizations, like the Brain Injury Association of America, provide invaluable resources for those navigating this journey.
Coping and Finding Meaning
Living with a brain injury means learning to navigate the present moment while also allowing space for growth and exploration. Coping strategies such as mindfulness, pacing activities, and self-compassion can help manage daily challenges. Therapy can provide a space to process emotions, develop strategies for adaptation, and build a sense of meaning beyond the injury itself.
For those going through this journey, know you are not alone, and your life still holds value and purpose. Healing doesn’t mean returning to an exact version of who you were before—it means finding strength in who you are now.
If you or a loved one is navigating life after brain injury and are looking for support, I invite you to reach out. Together, we can explore ways to cultivate connection and meaning in this next chapter of life.
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